First annual NPS Meet and Greet

8/1/2023

Neonatal Progeroid Foundation held its First Annual Family Meet and Greet on July 28-29, 2023. The meet and greet consisted of various medical appointments as well as a medical symposium hosted by Drs. Jennifer Wambach and Katherine King.

We had families fly in from around the world and everyone was thankful to finally meet, as some families had spoken for close to 7 years. Another purpose, of the meet and greet, was to start a Natural History of Neonatal Progeroid Syndrome so that years from now families and doctors alike can benefit with the knowledge gained.

Special thanks to Dr. Wambach, Dr. King and Dr. Cole for their continued support for Neonatal Progeroid Syndrome research. Donations have made this event possible and with continued support from our NPS friends and families, we hope to hold another meet and greet in two years with even more families in attendance.

2 Comments

Barbara Ainsworth

8/1/2023 06:41:09 pm

Thank you to NPF Readers and Supporters:

People. These people, each and every one, would say they are 'just an ordinary person'; a mother, father, doctor, researcher, child, sister, brother, grandparent, and/or friend. From my viewpoint, they are sooooooooooooooooooooooooooooo much more. Each person is a giver who is contributing to HUMANITY.

Hippocrates, Alexander Fleming, Edward Jenner, Johann Gutenberg, Einstein - each 'just a person', yet look what they accomplished for all the world. I liken the NPS, Washington University, and Children's Hospital people to these and other pioneers of progress.

In this humble person's opinion, the people who gathered at this event, and everyone supporting them, are the heroes pressing forward to not only identify the genes contributing to these syndromes, but to find treatments and resolutions.

My "hats off" to these brave and persevering souls. I'm proud and humbled to know you.

Sincerely,
Barbara Ainsworth

PS: One of the BEST assignments I've ever had was to play with the kids [and J] during their days at the Children's Hospital. I've never played so many games of 'Tic Tac", Jenga, Sorry, Uno and more - and loved every minute of it! Kinetic Sand was a blast; and I do so love to color! Thank you for the experience. Love you all!

Yenny

8/9/2023 04:43:00 am

Such an amazing experience 💖 ❤️: learn more about the syndrome, lovely places , excellent attention at the hospital (thanks to the doctors, volunteers and all staff involved ) but for me meet the kids and the families was absolutely unique, special moments that always will be in my heart .

Thanks Leslie for organizing everything.

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