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On October 18, 2023, In Greenville, NC D.H. Conley High School's DECA Chapter hosted a powder puff game to raise funds for NPF while also educating others with facts about Neonatal Progeroid Syndrome. It was a very successful event raising over $3500 going directly to research for the syndrome. We are so thankful to have such supportive families. In this case, the event was managed by a sibling of an adult with NPS. We are so happy to have AnnaClaire's support on this event as well as our social media and other marketing.
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AuthorAdult living with NPS Archives
August 2025
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